Monday, February 20th
Unfortunately, Will has not had a good morning.
Around 7 am he had a seizure. His right arm and hand twitched for about a minute. This happened again about an hour later. The doctors aren't completely sure it was a seizure... it could have been a normal newborn movement. But, with his history of seizures, brain bleed, and swelling they performed an EEG and a cranial ultrasound. It will be a little while before I get the results.
I can't remember if I had posted anything about this on the blog before surgery, but neurology did a cranial ultrasound before his surgery to get a baseline in case he had any neuro problems post-op. They did find that his VP shunt isn't working as well as it should. A small part of one of his ventricles is still swollen and compressed. This shouldn't occur if the shunt is working properly. Unfortunately, they can't tap his reservior on the top of his head to get rid of this extra fluid because the catheder doesn't go down far enough into his brain to get it out. So, I was already prepared for another neurosurgery to repair or replace his VP shunt. This small bit of swelling could have caused an irritation in his brain, which could have led to his seizures.
It is also possible that his phenobarbital (anti-seizure med.) is not at a therapeutic level, which could have caused him to have a seizure.
The docs also told me that his blood pressure did not change during his "seizures," which could suggest that this was not a seizure as well.
So, right now I'm trying to stay positive. This may not even be something serious. But, even if it is, this is something that God's Will can't handle.
Around 7 am he had a seizure. His right arm and hand twitched for about a minute. This happened again about an hour later. The doctors aren't completely sure it was a seizure... it could have been a normal newborn movement. But, with his history of seizures, brain bleed, and swelling they performed an EEG and a cranial ultrasound. It will be a little while before I get the results.
I can't remember if I had posted anything about this on the blog before surgery, but neurology did a cranial ultrasound before his surgery to get a baseline in case he had any neuro problems post-op. They did find that his VP shunt isn't working as well as it should. A small part of one of his ventricles is still swollen and compressed. This shouldn't occur if the shunt is working properly. Unfortunately, they can't tap his reservior on the top of his head to get rid of this extra fluid because the catheder doesn't go down far enough into his brain to get it out. So, I was already prepared for another neurosurgery to repair or replace his VP shunt. This small bit of swelling could have caused an irritation in his brain, which could have led to his seizures.
It is also possible that his phenobarbital (anti-seizure med.) is not at a therapeutic level, which could have caused him to have a seizure.
The docs also told me that his blood pressure did not change during his "seizures," which could suggest that this was not a seizure as well.
So, right now I'm trying to stay positive. This may not even be something serious. But, even if it is, this is something that God's Will can't handle.
posted by Stephanie Burns @ 11:05 AM
1 Comments:
At 2:53 PM,
Anonymous said…
Lige Turman once said, "The main thing is to keep the main thing, the main thing." Always fully rely on God and you will be blessed. May God be with you all/
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