Wednesday, January 25th
I just got word that it will be late Friday morning before we hear anything. Michigan holds a conference every Friday morning with all of their docs to discuss their patients.
In this conference, they will decide what Will's options are. They will look at his cath results and at his heart anatomy to decide what surgery they should do, and if it is even an option... They also need to decide if they're willing to accept him, which we think they will.
The docs also want to do a CT scan of his head today, just to make sure that everything is ok before going to surgery.
Their goal is to get him as stable as possible for transport. This will take a few days. So far they have been successful in weaning him off of one of his blood pressure medicines, vassopressin. They still need to wean him off dopamine. They also want to be able to wean him off fentnyl and versed (both pain & sedative meds). This is a very slow process. I really don't know how this will go with him being so fragile. But, I am going to stay close and watch to make sure they don't push him too far.
It did scare us that they're talking about there being a remote possibility that surgery can't help him. We think he has fought too long and too hard for them to just give up. This is a million dollar baby!!
In this conference, they will decide what Will's options are. They will look at his cath results and at his heart anatomy to decide what surgery they should do, and if it is even an option... They also need to decide if they're willing to accept him, which we think they will.
The docs also want to do a CT scan of his head today, just to make sure that everything is ok before going to surgery.
Their goal is to get him as stable as possible for transport. This will take a few days. So far they have been successful in weaning him off of one of his blood pressure medicines, vassopressin. They still need to wean him off dopamine. They also want to be able to wean him off fentnyl and versed (both pain & sedative meds). This is a very slow process. I really don't know how this will go with him being so fragile. But, I am going to stay close and watch to make sure they don't push him too far.
It did scare us that they're talking about there being a remote possibility that surgery can't help him. We think he has fought too long and too hard for them to just give up. This is a million dollar baby!!
posted by Stephanie Burns @ 9:18 AM
9 Comments:
At 9:58 AM,
Anonymous said…
You and Josh's strength should be an inspiration to all of us... We are in awe of the works God has exemplified and we support you and, of course, Will... We are amazed at the people from around the country who are supporting you in their prayers... See you soon...
At 10:29 AM,
Anonymous said…
Stephanie, we are all praying for all three of you. Just hold God's hand as you wait. He is right beside you...and will carry you when you feel you just can't go on. You are showing us all how strong a person can be. I am in awe! We are all praying...and praying...and praying. Love you all so much!!
At 10:48 AM,
Jay said…
I don't believe Will could have a better mother than you, Stephanie. You are indeed his primary caregiver. Your strength, your tenacity and your understanding of his medical needs are unbelievable. But more than that, we are all so in awe of your love and faithfulness. May God continue to hold you and comfort you and guide you through this journey. Praying His awesome blessings on you and Will and Josh this day.
Uncle Jay
At 10:55 AM,
Anonymous said…
" What a wonderful God we have-he is the Father of our Lord Jesus Christ, the source of every mercy, and the one who so wonderfully comforts and strengthens us in our hardships and trials. And why does he do this? So that when others are troubled, needing our encouragement, we can pass on to them the same help and comfort God has given us...
In our trouble God has comforted us, to show you from personal experience how God will tenderly comfort you when you undergo these same sufferings. He will give you the strength to endure...We were crushed and overwhelmed, and feared we would never live through it. We felt we were doomed to die and saw how powerless we were to help ourselves; but that was good, for then we put everything into the hands of God, who alone could save us, for he can even raise the dead. And he did help us, saving us, and we expect him to do it again and again." (from 2Cr ch 1)
We may never completely understand the why's, or if there even are reasons, or if it is just that we have to live in an imperfect world. But we do want to pass on to you that God is the only true comfort and peace. Whatever happens, whatever God's plan for your baby, he will give you everything you need to get through it. We may not know each other, but we know your pain and hold you up to our Holy Father. Hold fast in his love.
At 11:36 AM,
Anonymous said…
_G_O_D_has not given up and he is still in control. His love for Will has been made clear to us in so many ways. The strength He has given you throughout all of this is evident. He will not desert you or fail you- EVER. We just have to remember not to take our eyes off Him. He will guide the doctors. Keep leaning on Him and holding onto each other and keep taking comfort in how many are holding Will up in prayer. It is amazing!
I love you all so very much.
At 12:01 PM,
Anonymous said…
"I just wanted to let you know that you have a great staff looking after your baby. The doctors at UM are wonderful. I would never leave something this serious in the hands of another. Sydney, my nephew had right heart, not left. I know this is a scary time for you. My sister in law is an advocate for many mothers going through this. I would be more than happy to get her in contact with you, Stephanie. Sometimes having someone to lean on that has been in your shoes can make all the difference in getting through a scary time such as this. You are all in our prayers, and I am confident in Dr. Bove' and all of the doctors there at UM. May God be with William Blake and his family,"
Elizabeth Welch
lzyprl@comcast.net
At 12:02 PM,
Anonymous said…
Hello Stephanie and Josh
You are so correct because Will is a million dollar baby.
Keep the faith. I will continue to prayer for Will and the family
Take Care
Matilda
At 12:24 PM,
Anonymous said…
Your sweet little Will is in my prayers...
Annie,
Friend of the Lowrie's
At 12:38 PM,
Anonymous said…
Please know that my prayers as well as my family's, are with Will and all of his family.
Post a Comment
<< Home