Tuesday 2nd Update

Here's the latest. Will loves to challenge the docs here.

His IV in his foot started to leak and went bad, so the nurse had to take it out. Well, normally you would stick him somewhere else to get another line, but after several tries the docs couldn't get one. He has a pic-line, but his blood pressure medicines are going through it, and you can't stop them from going through to administer other medicines. If you did stop them, his blood pressure and oxygen saturations would instantly drop. He also has an arterial line in his other hand, but it is only used to check blood pressure and to draw blood for labs.

They can't put in a central line in his leg because it could dislodge his blood clot in his inferior vena cava. They can't put a line in his head because of his shunt. His veins on his shoulders can't have lines in them because they don't want them compromised with an upcoming heart surgery. The only other option is to do a line through his liver, but that is considerably risky given 1) it's a surgical procedure that could cause internal bleeding and an infection 2) he just had a heart cath through it yesterday 3) the liver was tougher than usual and it took 4 pokes yesterday for the doctor to find a vein.

Will was off of his feeds, but they decided that it was ok now to administer some of the medicines orally. They also found that some of them can be given through a shot to the muscle tissue.

The docs here want to wait to hear from Bove to see what the game plan is before they decide to do anything with his IV access. They think for now he is ok.

I want to thank all of you who have visited this site and written these incredible uplifting messages. It means the world to me and my family. I look forward to reading them everytime I log on.