Thursday 3rd Update

We just got the results of Will's contrast CT scan. It turns out his liver is ok, with no signs of bleeding. But, they did find that his stomach was not getting enough profusion (blood flow). His doctors are a little stumped... they don't know what caused it. They think it is possible that the vasopressin he was on did it. The good thing is that the doctors seem to be underwhelmed about it. They are just going to keep a close eye on it and hope it fixes itself. In the meantime, they have stopped his feeds and oral medications in order to give his stomach a break.

I also spoke with Will's case manager from his insurance company. She said that someone contacted her from Vandy about the possibility of transferring him to Michigan, and she said not to worry that they would cover it. She was very concerned about Will (and us), and asked to call if there is anything she can do. I didn't know that charismatic insurance company representatives actually existed! I even gave her this website address so she could keep up with Will's status. Isn't that wonderful?!

The Vandy docs held their weekly conference this morning and discussed Will's surgical options. Apparently, there are a couple of ways they can do his repair. They can use a conduit and/or do an arterial switch, but that would require heart surgeries every couple of years for the rest of his life, because the conduits are only good for about 5-10 years. They could also put in another shunt (giving him 2) and give him time to grow and see if the pressures in his heart improve. I'm not really sure what route we will take. I have complete confidence in Dr. Bove, so more than likely we will go with what he suggests.

I can hardly wait to hear from Michigan! Hopefully we'll know something tomorrow afternoon!