Sunday, November 6th
Will has had a decent weekend.
He did fail two of his sprints yesterday... the 1st one after 30 minutes and the 2nd one after 45 minutes. This is not uncommon for a premie, that is one of the reasons why they wanted to run the sprints throughout the weekend. He has been breezing through today's sprints.
Will continues to have problems with his feedings, even though he has a feeding tube going into his small intestine and is on 2 acid reflux medications. He spit up 11 times last night. So, his doctors have ordered what is called an upper GI. This is a procedure where radiologists put dye down his feeding tube into his digestive system and see what could be causing this problem. It could be a number of things... acid reflux, immature sphincter muscles at the top and/or bottom of the stomach, an obstruction, etc. Once they know what is causing it, the doctors will know how to treat him better.
I haven't met up with his kidney doctors yet, but I will tomorrow. Hopefully, they will be able to tell me when they plan on removing his dialysis catheder. I hope it's really soon!
Will's doctors did say that they will keep in his ventilator if they plan on doing the surgery within the next 2-3 days, but if it will be in a week or later they will go on ahead and take it out, perhaps tomorrow if continues to do well on his sprints!!
He did fail two of his sprints yesterday... the 1st one after 30 minutes and the 2nd one after 45 minutes. This is not uncommon for a premie, that is one of the reasons why they wanted to run the sprints throughout the weekend. He has been breezing through today's sprints.
Will continues to have problems with his feedings, even though he has a feeding tube going into his small intestine and is on 2 acid reflux medications. He spit up 11 times last night. So, his doctors have ordered what is called an upper GI. This is a procedure where radiologists put dye down his feeding tube into his digestive system and see what could be causing this problem. It could be a number of things... acid reflux, immature sphincter muscles at the top and/or bottom of the stomach, an obstruction, etc. Once they know what is causing it, the doctors will know how to treat him better.
I haven't met up with his kidney doctors yet, but I will tomorrow. Hopefully, they will be able to tell me when they plan on removing his dialysis catheder. I hope it's really soon!
Will's doctors did say that they will keep in his ventilator if they plan on doing the surgery within the next 2-3 days, but if it will be in a week or later they will go on ahead and take it out, perhaps tomorrow if continues to do well on his sprints!!
posted by Stephanie Burns @ 10:51 PM
4 Comments:
At 7:08 AM,
Anonymous said…
Stephanie, Josh & Will,
You are in our hearts and prayers today and everyday. Just know that we love you very much.
Stephanie your strength, Josh your courage and Will your fighting spirit are an inspiration to us all.
Love,
Big O Joe, Aunt Becky, Adam & Andrea
At 9:29 AM,
Anonymous said…
We should all take note, of course, of the example all of you are providing for us... We anxiously await your updates and you have done such a great job... We all are hoping that the catheter will be removed soon... I assume that will facilitate your holding him... I know that Josh is anxiously awaiting his return to the windy city... Our love to all of you..
Robert
At 11:25 AM,
Anonymous said…
I am so glad you two had a pretty good weekend! I know the doctors are being guided by the GREAT PHYSICIAN, and know that Will is in excellent hands. We are getting things together for your homecoming and I hope and pray (as does everyone!) that won't be long! I know being separated and away from home is tiresome, but you will all be together soon!
Hugs, kisses, and much love,
Kirk/ Grammie
At 12:29 PM,
Jay said…
In all our prayers, we remember you and Will. Stay strong.
Love,
Uncle Jay, Aunt Lisa Jo,
Parks and Wren
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