Wednesday Update
Will had a good day. His chest was closed this morning, and he tolerated it fairly well.
He is going to have another EEG done tomorrow... this time just for an hour to make sure that he is still not having any seizures. They will also use this test to determine if they can take him down to just 1 anti-seizure medication... phenobarbitol. This medication is much easier to manage for small babies whereas the Dylantin is much more difficult.
Will was much more active this evening, he looked at us and squeezed our fingers so tight! His hair was so adorable... his nurse gave him a bath and when she shampooed his hair she styled it to be spikey on top. I wish I had my camera to take a picture so I could share it with you.
He is going to have another EEG done tomorrow... this time just for an hour to make sure that he is still not having any seizures. They will also use this test to determine if they can take him down to just 1 anti-seizure medication... phenobarbitol. This medication is much easier to manage for small babies whereas the Dylantin is much more difficult.
Will was much more active this evening, he looked at us and squeezed our fingers so tight! His hair was so adorable... his nurse gave him a bath and when she shampooed his hair she styled it to be spikey on top. I wish I had my camera to take a picture so I could share it with you.
8 Comments:
At 5:54 AM, Anonymous said…
This is great news! Thanks so much for keeping us posted. We are still praying. Keep your faith.
Love you!~Aunt Sally
At 7:12 AM, Anonymous said…
Wonderful! We rejoice with you.Daughter Janet Durham and her husband William are praying for you.
At 8:39 AM, Jay said…
I can just imagine your handsome little Will charming all the nurses. Stay strong and have a wonderful day. You are in our thoughts and prayers.
Uncle Jay
At 8:46 AM, Anonymous said…
WONDERFUL NEWS!!!!!! I know you are so thrilled he is doing better and interacting with you more and more. So exciting! I can't wait to be with him again myself! Tell him I love him and will see him soon!
Love,
Kirk/Mom/Grams?
At 12:23 PM, Anonymous said…
Awww he's so adorable! I can't wait to see him again! :o) I love yall!
Aunt Annie\Leigh-Ann
At 3:57 PM, Anonymous said…
What a nice ending to the day. People ask me about Will all the time: neighbors, friends and family. You guys hang in there. Where there's Will, God will find a way!
aunt lisajo
At 7:18 AM, Anonymous said…
Great News!! You 3 are always in our Prayers. We look forward to your updates.
Love Big O Joe, Aunt Becky, Adam & Andrea
At 7:35 AM, Anonymous said…
We are soooo thankfull for these precious updates... we keep looking for them every few minutes during the day so we get them 'hot-off-net' !! Steph, you are so strong. We are always praying for you & Josh & Will.
Love, GREAT GRAND MOTHER & GREAT GRAND DADDY PERDUE
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