Tuesday, February 28th

Will gave us quite a scare this morning.

When I arrived to his room this morning, his nurse said that Will had been keeping her very busy... not a good sign. Apparently, 10 minutes before I got there, he had another "spell." His heart rate, blood pressure, and oxygen saturations dropped suddenly. They gave him some albumin and turned his pacer wires on to keep his heart rate up.

At first, no one knew exactly what caused this, but it now seems that his blood vessels were dry. The reason why this happened is because his TPN and lipids (IV nutrition) had to be turned off because they were not compatible with some of the other meds they had to administer through his PICC line. Normally, you could have the TPN and lipids run through another line, but Will only has one point of access (PICC line). Since he is a cardiac baby, it is extremely difficult to get a line in him... not to mention that he can't have lines in certain areas because of the different issues he has (trach, VP shunt, clots, infections, etc.).

So, for now he seems stable. It is possible that this will happen if he gets "dry" again. Usually they can correct this in a hurry. In the meantime, his diuretic drug, lasix, has been turned down to only 1 dose a day so that his urine output slows, which has worked thus far.

We'll just have to wait & see... something that we have become quite familiar with.