Tuesday, December 27th

We had another long day today. Will has been having spells where his oxygen saturations ("sats") in his blood drop. For most of today his sats have been in the low to mid 60's, sometimes dropping into the 50's. (He should be in the 70's or low 80's.)

At one point today, his ventilator setting was up to 46! But, after a little "tweaking" it is down to 42. Will has also required a lot of oxygen - anywhere from 60 to 90%.

They had to put Will on a paralytic and a strong pain medication to make sure he stays calm. They also took him off of his feeds. Hopefully they will be able to put him back on them by tomorrow.

Doctors still don't understand what's causing this. He shows no more signs of infection. His chest x-ray shows no changes, and his heart echo this afternoon looked normal. It's great to know that it looks good, but we want to know what the problem is so we can fix it.